- To provide direct support to people living with and affected by ALS.
- To implement and execute the patient services & programs of the Society.
- To source additional local support services in communities throughout BC and the Yukon that could provide additional assistance to people affected with ALS.
RESPONSIBILITIES (note that the following tasks are shared with another Client Services Coordinator):
1. On rotation, contacts ALS patients by phone to offer personalized support.
2. Builds relationships with families living with ALS and ALS BC volunteer support group facilitators.
3. Manages and supports ALS BC support groups:
- Recruits and trains volunteer support group facilitators
- Provides update of upcoming ALS BC activities, newly diagnosed patients and ALS information material to facilitators
- Coordinates and chairs conference calls of support group meeting facilitators
- Facilitates support group meetings, in the absence of volunteer support group facilitator (currently Vancouver & Surrey)
4. Books transportation/accommodation for people living with ALS attending medical appointments and ALS BC events.
5. Organizes the following events and programs:
Day of Caring for Caregivers (5 locations) – October dates
- Identifies date, venue, speakers and volunteer support
- Prepares logistics of the program (agenda, invitation and participants)
- Ensures that each event is within the approved budget
Camp Alohi Lani (a camp for children of ALS patients)
- Coordinates and attends the 4-day camp (August)
- Identifies date, venue and volunteer facilitators
- Prepares logistics: insurance forms, invitations, agenda, etc.
- Recruits volunteer cabin supervisors
- Communicates agenda, updates and logistics to volunteer facilitators
- Compiles survey forms from participants and their guardians or parents
Psychological Support (counselling program of the society)
- Maintains and updates database of participating clients & counsellors
- Prepares reports and updates to the Psychological Support Committee
- Coordinates psychological support orientation/training to participating psychologists/counsellors
- Coordinates with ALS Centre at GF Strong to identify location and ALS patients for the mobile clinics
- Identifies date, venue and GF Strong Team participants
- Prepares travel booking and accommodation of GF Strong team
6. Ensures that patient services of the Society are communicated to people living with ALS, their families & caregivers and health care professionals:
- Proactively connects with patient members and their families by phone at least 4 times a year, unless the patient requests no contact. Records client services relevant issues and resolutions
- Produces a quarterly e-newsletter to healthcare providers that communicate programs, services and events
- Provides update and distributes ALS educational materials to healthcare professionals on a monthly basis or when necessary
- Participates in ALS Centre and ALS BC joint meetings on a quarterly basis
7. Acts as a resource advocate for people living with ALS and their families:
- Assists with seeking resolutions for patient members on request, when requiring the aid of any type
- Identifies areas where government programs are lacking
- Manages database resources available throughout British Columbia and the Yukon
8. Manages the ALS patient database and records:
- Prepares ALS membership application form and package within two business days upon receipt of the application form
- Encodes patient data in Raiser’s Edge completely and accurately (weekly posting)
- Ensures that paper file and Raiser’s Edge database is updated when a patient passes away (weekly posting)
9. Acts as ex-officio and recording secretary of the ALS BC Patient Services Committee.
10. Provides overall support for new patient service initiatives identified by the Patient Services Committee, such as Caregiver Pilot Program.
11. Records and updates patient services policies & procedures.
12. Provides patient service updates for ALS BC website and newsletter.
13. Provides support to projects and events that may be assigned by the Executive Director.
- Must possess excellent verbal communication skills
- Must be an innovative thinker, with strong abilities to problem-solve
- Must be proficient in Windows-based programs
- Must have valid BC driver’s license (Class 5) and access to a vehicle (mileage will be compensated)
- Experience in a healthcare setting in the field of counseling or social work an asset
- Ability to handle multiple projects at the same time
- Positive and mature disposition
- Excellent team player, creative, flexible and detail-oriented
- Knowledge in Raiser's Edge database program will be an asset
Competitive salary and benefits package are available. We thank all applicants for their interest in this position, but only applicants selected for further consideration will be contacted.