Manager, National Events

Organization NameJob CategoriesPosition TypeRegion and Location(s)Career LevelSalaryAd Online SinceApplication Deadline
Cystic Fibrosis Canada
  • Event Coordination
  • Fundraising / Giving
  • Volunteer Management / Coordination
Full Time
  • Ontario - Metro Toronto Area - Toronto
Manager (Supervisor of Staff)N/A2019-04-042019-04-26


Cystic Fibrosis Canada (CF Canada) is a national charitable not-for-profit corporation established in 1960, and is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.

Since establishment, Cystic Fibrosis Canada has invested more than $253 million in leading research, innovation and care. As a result, Canadians with cystic fibrosis have one of the highest median survival rates in the world.

We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Canadians living with cystic fibrosis, and ultimately to find a cure for this devastating disease.



Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure.

Cystic fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis involvement differs from person to person. However, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, eventually causes death in the majority of people who have cystic fibrosis.

Typical complications caused by cystic fibrosis are difficulty in digesting fats and proteins; vitamin deficiencies due to loss of pancreatic enzymes; and progressive loss of lung function.

It is estimated that one in every 3,600 children born in Canada has cystic fibrosis. More than 4,300 Canadian children, adolescents, and adults with cystic fibrosis attend specialized CF clinics. With newborn screening available in most provinces across Canada, the 2017 median age of survival is now 52.3 however those who passed away in 2014 were of a median age of 33.6 years of age.



The Manager, National Events is primarily responsible for the execution and growth of Cystic Fibrosis Canada’s national events, such as the Walk to Make Cystic Fibrosis History and Shinerama. In addition, you will support initiatives to grow and maximize efforts to achieve the organizations mission, vision and goals.

In this role, you will report directly to the Executive Director, National Events and will be based out of our national office in Toronto, ON near Yonge and Eglinton.



  • 3 or more years’ fundraising and/or operations experience with a proven track record of achieving fundraising goals;
  • Experience working on multiple fundraising events;
  • Strong project management skills;
  • Strong written and verbal communication skills;
  • Knowledgeable in using Microsoft Office and database applications;
  • Communications including fundraising e-mail copy writing;
  • An understanding on how to analyze data and metrics;
  • Working knowledge of Artez, Constant Contact, Raiser’s Edge and InDesign is an asset; and
  • Bilingual in English and French is an asset.



  • Create and execute a national events communications plan including scheduling, copy writing and email deployment;
  • Lead the development, launch and maintenance of national events websites;
  • Lead the creation, packaging and distribution of national events collateral and supplies;
  • Monitor incoming funds for the Walk to Make Cystic Fibrosis History and Shinerama to ensure revenue is tracking as expected;
  • Create support and training documents for staff, volunteers, walkers and donors;
  • Lead the Worldwide Walk to Make Cystic Fibrosis History with tasks including sourcing destinations, recruiting participants and stewarding fundraisers;
  • Lead the wrap up of national events including implementing post-event surveys, analyzing trends, etc;
  • Provide support to new national event initiatives such as the Shinerama Alumni Event;
  • Manage the national events budgets to ensure funds are being properly spent;
  • Assist internal and external stakeholders with basic support and troubleshooting regarding web-based solutions and other communication tools (customer service for the events);
  • Provide support to other operations and internal teams with the organization as required;
  • Report, analyze and perform other duties as assigned;
  • Support for all logistics and administration for national events;
  • Support growth strategies for the Walk to Make Cystic Fibrosis History, Shinerama and the Ride foe the Breath of Life; and
  • Support the growth and development of one direct report (Coordinator, National Events).



Please submit your resume and cover letter to Please indicate “Manager, National Events” in your subject line, and include your salary expectations.

Note: Jobs are posted for a minimum of five (5) business days.

While, we wish to acknowledge all applicants, only those selected for an interview will be contacted.

Cystic Fibrosis Canada is committed to making the recruitment process accessible to all candidates. Accommodations for disabilities are available upon request.

For additional information on our values (Excellence, Accountability, Caring & Teamwork), Cystic Fibrosis Canada and the courageous fight being waged against this disease, please visit